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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, July 5, 2014

Young UK musician Cassie raises awareness of TMAU in the media

A young lady from London has appeared in the UK media this week to raise awareness of trimethylaminuria (TMAU) by talking about her own TMAU. Cassie is 22 and is a budding Jazz musician and singer. She is also a psychology student. Her official facebook page mentions her singing style and voice being compared to Amy Winehouse.

Her article for the article about her TMAU has appeared on a number of news sites worldwide, including one of the biggest online news sites, the Daily Mail online. Cassie talks TMAU in the Daily Mail

Cassie mentions that she heard of TMAU on a radio interview, which may have been one of Ellie's interviews earlier this year.

Thank you to Cassie for being a brave pioneer in raising awareness of TMAU.  The first step to understanding, treatment and research of metabolic malodors is first for the public to become aware of the condition. Currently nothing is done as mewtabolic malodors are not known of apart from TMAU, of which only a handful of health experts have ever had an interest and usually have no funding or other things to do.

Other links related to Cassie :
Cassie Graves official Facebook page
Cassie Graves Twitter page
Cassie Graves Youtube channel
Cassie Graves official website

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A EURORDIS and NORD Member Organization


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