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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, July 5, 2014

Young UK musician Cassie raises awareness of TMAU in the media

A young lady from London has appeared in the UK media this week to raise awareness of trimethylaminuria (TMAU) by talking about her own TMAU. Cassie is 22 and is a budding Jazz musician and singer. She is also a psychology student. Her official facebook page mentions her singing style and voice being compared to Amy Winehouse.

Her article for the article about her TMAU has appeared on a number of news sites worldwide, including one of the biggest online news sites, the Daily Mail online. Cassie talks TMAU in the Daily Mail

Cassie mentions that she heard of TMAU on a radio interview, which may have been one of Ellie's interviews earlier this year.

Thank you to Cassie for being a brave pioneer in raising awareness of TMAU.  The first step to understanding, treatment and research of metabolic malodors is first for the public to become aware of the condition. Currently nothing is done as mewtabolic malodors are not known of apart from TMAU, of which only a handful of health experts have ever had an interest and usually have no funding or other things to do.

Other links related to Cassie :
Cassie Graves official Facebook page
Cassie Graves Twitter page
Cassie Graves Youtube channel
Cassie Graves official website


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