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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, February 12, 2015

Rare diseaseTweetchat with NORD and ABC : 1pm ET 17th Feb

Click for full details 
Tweetchat with NORD and ABC 
Chat about rare diseases
!7th Feb at 1pm ET
Use your twitter account to tweet, or just read the tweets
Send tweets to  @Rarediseases and @RareDayUS

Guests :
Dr. Richard Besser, Chief of the ABC News Medical/Health Unit
Marsha Lanes, MS, CGC, NORD’s Genetic Counselor & Medical Educator

With the annual Rare Disease Day fast approaching on 28 Feb, the popular weekly ABC news health 'tweetchat' show is having a tweetchat about rare diseases on 17th Feb. 

Since trimethylaminuria is regarded as a 'rare disease' (perhaps due to gross underestimates), then presumably TMAU people are free to join the ABC/NORD tweetchat. 

More details can he found in the NORD press release : Link 

Tweetchat Coordinates
When: Tuesday, February 17, 2015: 1:00-2:00 p.m. ET
Tweetchat Hashtag: #abcDRBchat 
Tweetchat Moderator: @abcdrbchat 
Dr. Richard Besser: @DrRichardBesser
NORD: @Rarediseases and @RareDayUS

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