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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, February 12, 2015

Rare diseaseTweetchat with NORD and ABC : 1pm ET 17th Feb

Click for full details 
Tweetchat with NORD and ABC 
Chat about rare diseases
!7th Feb at 1pm ET
Use your twitter account to tweet, or just read the tweets
Send tweets to  @Rarediseases and @RareDayUS

Guests :
Dr. Richard Besser, Chief of the ABC News Medical/Health Unit
Marsha Lanes, MS, CGC, NORD’s Genetic Counselor & Medical Educator

With the annual Rare Disease Day fast approaching on 28 Feb, the popular weekly ABC news health 'tweetchat' show is having a tweetchat about rare diseases on 17th Feb. 

Since trimethylaminuria is regarded as a 'rare disease' (perhaps due to gross underestimates), then presumably TMAU people are free to join the ABC/NORD tweetchat. 

More details can he found in the NORD press release : Link 

Tweetchat Coordinates
When: Tuesday, February 17, 2015: 1:00-2:00 p.m. ET
Tweetchat Hashtag: #abcDRBchat 
Tweetchat Moderator: @abcdrbchat 
Dr. Richard Besser: @DrRichardBesser
NORD: @Rarediseases and @RareDayUS


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