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| Click to read Tracy's TMAU story |
A quote from Tracy's article :
" I beg the medical community as a whole do not allow this lack of awareness, support or advances to continue – nobody deserves this torturous segregation. I have spent my life in hiding not wanting to inflict my hell on anyone else. I apologise for the lack of any positivity but doctors, counsellors, everybody needs to understand how really bad it is because just saying you smell doesn’t seem to cut it. I want to smile a lot more, laugh a billion times more and just be able to say I am happy. There’s nothing else to do but be here and I don’t want to simply remain this way. "
You can read Tracy's full TMAU article on the Rare Disease Day website : click here
Rare Disease Day is 28th Feb
You can write your own article on living with TMAU on the Rare Disease Day website : Tell your story
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6 comments:
She is telling it like it is.
She is telling it like it is.
THERE ARE SO MANY PEOPLE WHO WANTS TO END THEIR LIVES BECAUSE OF THIS CONDITION, AND YET THE MEDICAL COMMUNITY IS STILL NOT LISTENING OR HEARING THESE PEOPLE'S CRYS, ITS JUST SAD.
I like the essay. It says everything that I feel. I can't add anything more.
Le agregaría que somos tratados como si fuéramos delincuentes
Hola a todos. Este es sólo uno de tantos miles de personas que sufrimos esta desagradable condicíón y tenemos que sufrir a diario desprecios, burlas, asco, y muchas cosas más. Cuántas personas como Tracy estamos pidiendo a gritos alguna medicina o tratamiento. Por favor, no somos pocos, habemos mas gente en el anonimato sin saber que hacer sufriendo y pensando a diario que quitandonos la vida solucionamos tanto dolor sicológico... Gracias, necesitamos ayuda.