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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Upcoming get-togethers


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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, March 3, 2015

MEBO Annual Meetup/Conference Orlando, Florida 2015

MEBO ANNUAL MEETUP AND CONFERENCE

Embassy Suites Orlando - North
It's that time of year again to hold the MEBO Annual Meetup and Conference. It will be held in Orlando, Florida on the weekend of Friday, April 17th thru Sunday, April 19th. Of course, everyone is invited to stay through Monday or longer, and some frequently come one or more days earlier. The conference is always held on Saturday, and Sunday is a socializing field day, in which we go out as a group see special sites in the city.

Many have already expressed a desire for this meetup to be held at an Embassy Suites because it offer daily complimentary buffet breakfast and "Happy Hour" Manager's Reception from approximately 5:00pm to 7:00pm every evening. Therefore, if you would like to join us this year, please make your reservations as soon as possible to get a good rate. The lowest online rates are nonrefundable, but for only just a little more, you can hold a reservation with your credit card, and it won't be billed until you check out. Check cancellation policy as well. If you live around the area, or want to stay at another hotel, you can still join us. Just let me know by emailing me at maria.delatorre@meboresearch.org, so that we can arrange meeting with you.

AIRPORT TRANSFERES
None of the Embassy Suites in the Orlando area offer courtesy airport shuttle service to/from the hotel. I have checked with the three Embassy Suites in the Orlando area, and although parking is complimentary (one per suite) at the Embassy Suites Orlando - North, none offer complimentary airport transfers. Yellow Cab could cost $49 each way. Perhaps you can coordinate with others who arrive around the same time to share a cab.

MEBO 5TH ANNUAL MEETUP AND CONFERENCE


Date/Time:


Saturday, April 17, 2015
through Sunday April 18th.

Location:

Embassy Suites Orlando - North (4 star hotel)
225 Shorecrest Drive
Altamonte Springs, FL 32701
407 834 2400


Online Reservations:

Book your room as soon as possible to get the lower rate!
Or call their Reservations number and book over the phone,

866-460-7456.

Please come and join me,
so that we can spend some time together and chat.
I look forward to meeting new faces and seeing familiar faces again!


AGENDA FOR MEBO'S 5TH ANNUAL CONFERENCE 2015


LOBBY, Embassy Suites Orlando North
The past 4 conferences MEBO has held included many powerpoint presentation done by our scientists pro-bono specifically for our meetup as well as other presentation performed by the various MEBO Directors. Information discussed in these conferences can be found in THE MEBO BLOG (Scroll down to see all posts in this category).

Since many of our experts are currently in the midst of ongoing research, they are not available to do another presentation for us for this year. Therefore, this year's conference is going to be more informal with open discussions, reading material, and handouts. The following is the agenda for Saturday, April 18 starting at 12:00 noon in my suite:

  1. I will do a presentation on notable results and outstanding trends of the MEBO TMAU test programs, while protecting the privacy of everyone involved. We will highlight and discuss the PROS AND CONS of the urine test vs the genetic test, and some of their inconsistencies.
  2. A great deal of time and emphasis will be given to discussion on diet and nutrition for TMAU and other body/breath odor conditions
  3. MEBO's US Public Relations Director, Glenna, will be discussing a book on living with and managing TMAU
  4. Informal discussion about where MEBO is heading in our pursuit for research
  5. Discussion on our Raising Awareness Campaign (Scroll down to see all posts).

SEE YOU ALL THERE!

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br (MEBO Brasil)
diretoria@mebo.com.br
The MEBO Blog (English)
El Blog de MEBO (español) 
NORD Member Organization
EURORDIS Member Organisation 



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