Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, March 3, 2015

MEBO Annual Meetup/Conference Orlando, Florida 2015


Embassy Suites Orlando - North
It's that time of year again to hold the MEBO Annual Meetup and Conference. It will be held in Orlando, Florida on the weekend of Friday, April 17th thru Sunday, April 19th. Of course, everyone is invited to stay through Monday or longer, and some frequently come one or more days earlier. The conference is always held on Saturday, and Sunday is a socializing field day, in which we go out as a group see special sites in the city.

Many have already expressed a desire for this meetup to be held at an Embassy Suites because it offer daily complimentary buffet breakfast and "Happy Hour" Manager's Reception from approximately 5:00pm to 7:00pm every evening. Therefore, if you would like to join us this year, please make your reservations as soon as possible to get a good rate. The lowest online rates are nonrefundable, but for only just a little more, you can hold a reservation with your credit card, and it won't be billed until you check out. Check cancellation policy as well. If you live around the area, or want to stay at another hotel, you can still join us. Just let me know by emailing me at, so that we can arrange meeting with you.

None of the Embassy Suites in the Orlando area offer courtesy airport shuttle service to/from the hotel. I have checked with the three Embassy Suites in the Orlando area, and although parking is complimentary (one per suite) at the Embassy Suites Orlando - North, none offer complimentary airport transfers. Yellow Cab could cost $49 each way. Perhaps you can coordinate with others who arrive around the same time to share a cab.



Saturday, April 17, 2015
through Sunday April 18th.


Embassy Suites Orlando - North (4 star hotel)
225 Shorecrest Drive
Altamonte Springs, FL 32701
407 834 2400

Online Reservations:

Book your room as soon as possible to get the lower rate!
Or call their Reservations number and book over the phone,


Please come and join me,
so that we can spend some time together and chat.
I look forward to meeting new faces and seeing familiar faces again!


LOBBY, Embassy Suites Orlando North
The past 4 conferences MEBO has held included many powerpoint presentation done by our scientists pro-bono specifically for our meetup as well as other presentation performed by the various MEBO Directors. Information discussed in these conferences can be found in THE MEBO BLOG (Scroll down to see all posts in this category).

Since many of our experts are currently in the midst of ongoing research, they are not available to do another presentation for us for this year. Therefore, this year's conference is going to be more informal with open discussions, reading material, and handouts. The following is the agenda for Saturday, April 18 starting at 12:00 noon in my suite:

  1. I will do a presentation on notable results and outstanding trends of the MEBO TMAU test programs, while protecting the privacy of everyone involved. We will highlight and discuss the PROS AND CONS of the urine test vs the genetic test, and some of their inconsistencies.
  2. A great deal of time and emphasis will be given to discussion on diet and nutrition for TMAU and other body/breath odor conditions
  3. MEBO's US Public Relations Director, Glenna, will be discussing a book on living with and managing TMAU
  4. Informal discussion about where MEBO is heading in our pursuit for research
  5. Discussion on our Raising Awareness Campaign (Scroll down to see all posts).



María de la Torre
Founder and Executive Director

A Public Charity (MEBO Brasil)
The MEBO Blog (English)
El Blog de MEBO (español) 
NORD Member Organization
EURORDIS Member Organisation 

SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online
at no extra cost to you.
MEBO gets small commission from Amazon.

Please use your credit card to make your donation to MEBO.

Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner

A EURORDIS and NORD Member Organization


Post a Comment