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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, June 19, 2015

Help ! I Smell of Fish documentary officially on Youtube

Help ! I Smell of Fish
UK documentary about TMAU , circa 2008

This video is a recording of a TV documentary that was aired around 2008 on a UK TV channel. It has now been uploaded by BarcroftTV on their Youtube channel. For many years it was helpfully uploaded to Youtube by a community member, but with Barcroft uploading it along with ads, it seems they will have copyright permission and the video will be there 'officially'.  

On a negative, the comments are pretty disparaging (due to ignorance), but on a positive note it has 45,000 views in 2 weeks, which is a lot for a TMAU video. So hopefully this will reach a far greater audience than previous Youtube uploads on the subject.

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Anonymous said...

Hi, I have been fasting from sunrise to sunset for the last 5 days. This seems to have helped reduce the odour completely. This is obviously not a permanent solution as we need food for normal body function but desperate short time solution.

Jun 22, 2015, 11:23:00 AM
Anonymous said...

It's such a relief to hear the other TMAU sufferers expressing the same feelings that I have had over the years! I realize even more that the feelings of shame, despair,
hopelessness, etc. are brought on by the condition and are not a part of my personality. Thank you for posting this video.

Jun 24, 2015, 11:59:00 PM
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