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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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or contact
Ubiome Gut EXPLORER
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Update : discount is suspended
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, December 2, 2015

Living and coping with odor conditions


MENTAL HEALTH FOR SUFFERERS

When nothing more can be done at this time to manage odor, then focus needs to go towards managing emotions, behavior, and mental health. A great deal of sufferers have seen mental health therapists at one time or another to learn how to cope. The problem seems to arise when the therapists insists that you don't have an odor problem because he or she cannot smell you, while others can. See post, 'Do they smell me or not?' http://www.meboblog.com/2011/01/do-they-smell-me-or-not.html

Instead of trying to convince the sufferers that he or she does not have an odor condition, therapy should focus on how to cope socially when we believe people are responding to the odor. We know there is intermittent odor flare ups, and those are the ones we need to learn to manage emotionally and socially.


MEBO has published 19 posts in the MEBO Blog under the mental health category and 13 posts under the 'mental training' category. Some of these posts are more serious in nature and others are less. None of them can replace good mental health therapy.


Scroll down to see all posts in each category below:

Mental Health posts: http://www.meboblog.com/search/label/mental%20health

Mental Health training posts: http://www.meboblog.com/search/label/mental%20training

Posts on Olfactory: http://www.meboblog.com/search/label/olfactory

Posts on MEBO activity against Olfactory Reference Syndrome without much more research on the matter:
http://www.meboblog.com/search/label/Olfactory%20Reference%20Syndrome%20%28ORS%29

Posts on employment: http://www.meboblog.com/search/label/employment%20%2F%20homeworking

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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