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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Monday, May 9, 2016

Sheri Schleusner Denniston Norton passed away May 7th


Dont forget to rate and comment!!:-)
here:
https://www.youtube.com/watch?v=3fWdbyHON1A&feature=youtu.be

It is with great sadness to post that Sheri Schleusner Denniston Norton passed away on May 7, 2016. We remember Sheri who's been with us since 2008. She sang for us and brighten our day. Here's a post in this blog dated October 6, 2008, of Sheri's beautiful voice; yes, she's the lead singer and sang the 3 different harmonies herself. The video is followed by an interview.


MARIA: Sheri, who is singing the harmony with you on this soundtrack?

SHERI: The harmony is me! After recording the melody line, I wanted to add 3 different tones of harmony. So after the melody line was laid (me), the already recorded music was played back to me as I added one line of harmony and then the process was repeated until it was were I wanted it in terms of harmony and overall sound.
The track has absolutely nobody singing on the track but myself. Doing tracks this way is a long tedious process of laying one track on top of the other until what you have in the end is what sounds like one song being sung by several folks involved.


See post for full details. http://www.meboblog.com/2008/10/spotlight-on-our-rising-star.html



This very moving video was sent to us by Sheri.

With this lullaby we wish everyone a peaceful, restful sleep tonight after having had such a wonderful conference call today. Tomorrow you shall wake up refreshed and ready to have a positive and productive new day!

nite nite.

María and Sheri
August 31, 2008

Rest in peace, Sheri. You will be greatly missed by many.

María de la Torre

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