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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, June 22, 2016

TMAU Test Program resumes July 5, 2016

I'm happy to announce that the MEBO TMAU Test Program will resume on July 5, 2016. Currently, MEBO has a wait list of approximately 230 persons who interested in doing this test, and each person on the list will be contacted in the order their requisition was received.

If you did not provide all the information requested by the online Requisition Form, please do so asap, or your name will be skipped until all others on the wait list have been worked.

United States shipments of these 230 persons will be processed first to expedite the process of clearing the wait list, followed by clearance of international shipment on the wait list. Afterwards, all new requisitions will be processed.In addition, only those applications that are completed with all the required information needed to obtain shipping cost information will be processed. If you did not provide all the information requested by the online Requisition Form, please do so asap, or your name will be skipped until all others on the wait list have been worked.

If you are interested in doing the MEBO TMAU urine test for $150 plus round trip shipping cost, please fill out the online Requisition Form, and your information will go on a list to be serviced after the current wait list is processed.

MEBO Research
TMAU Urine Test

Click here for online application form,

$150 plus
shipping costs

for one test,
$250 plus
shipping costs
for 2 tests over time.

Send email to to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 15 to 20

DATE: 22 JUNE 2016
Now on : Program Resuming 5 July 2016
Samples analyzed since June 2012 : 287

Test analysis performed in
batches of 20

I have personally volunteered my time and administrative and billing services for this test process in order to keep test cost as low as possible. I hope that this low cost, high quality test will consequently be affordable to all sufferers who wish to know whether they have Primary TMAU or Secondary TMAU.


María de la Torre
Founder and Executive Director

A Public Charity (MEBO Brasil)
The MEBO Blog (English)
El Blog de MEBO (español) 
NORD Member Organization
EURORDIS Member Organisation 

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Anonymous said...

It would be nice to know how many people out of the 230 actually suffers from this condition. Also good for the medical records, I guess more awareness.

Jun 23, 2016, 11:01:00 PM
Maria de la Torre said...

An approximate calculation of the 287 tests performed by MEBO is that approximately 5% of those tested received positive results for Primary TMAU, and approximately an additional 25 to 30% are positive for Secondary TMAU. A more precise calculation needs to be done to eliminate data from those who have tested more than once. These figures are not an exact calculation.

Jun 24, 2016, 12:08:00 PM
Deb said...

Hi Maria, I would like to know if some international sample is tested positive.

I'm from Italy, the urine sample will arrive intact and in good condition to be analyzed? I am afraid that the trimethylamine evaporate during transport.

Thank you in advance

Jun 27, 2016, 6:17:00 PM
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