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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, July 10, 2016

Meetup : London Aug 7th Sunday

On: Sunday 7th August from 12 - 6pm
at Grosvenor Square Gardens
Grosvenor Square
Mayfair, City of Westminster
London W1K (near Marble Arch tube)

A message from Karen.
MEBO Research UK Public Relations Director

Lovely to see everybody at the meet up on 9th July. We all agreed we should meet up more regularly, so we will!
It was great to share ideas, stories and dietary recipes. Some people even make their own cultured probiotics such as kefir! For external cleaning of the body and the home, vinegar seems to be a star product and reasonably priced too. Some good ideas about safe cleaning products are provided below:

Cleaning Products to Avoid If You Have Allergies (by  Penn Jersey):
Cleaning products are commonplace in many households, as are the kinds of products themselves. These products are often compounds containing a variety of chemicals. However, some of these popular chemicals have been linked to a number of side effects.

The three most common offenders of household products include formaldehyde, ammonia, and sodium lauryl sulphate (SLS). These three ingredients can be found in a variety of seemingly harmless products. However, exposure to these chemicals daily - and especially in concentration - can result in a variety of side effects.  Understanding the risks that you are taking can help you discover alternatives, such as natural cleaning products that complete the same tasks without the risk.

 Read full article:

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Anonymous said...

Do they talk about the uk tmau research when they meet up?

Jul 11, 2016, 10:33:00 PM
Anonymous said...

Not especially, no.
We talk about anything at all, but we don't have any information about the research other than has already been published on the mebo site.

Jul 12, 2016, 2:33:00 PM
Anonymous said...

Not especially, no.
We talk about anything at all, but we don't have any information about the research other than has already been published on the mebo site.

Jul 12, 2016, 2:33:00 PM
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