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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, September 30, 2016

MEBO TMAU Test Batch#16 received by lab

BATCH#16: The MEBO TMAU Test Program Batch#16 with 27 samples was received by the lab for analysis on September 27, 2016. The lab has 30 days to return the results to MEBO on a spreadsheet, which I in turn create individual results reports and email each participant's his or her own results with information that will be useful to their physician, should they have positive for TMAU results.

BATCH#17: There are 12 tests purchased for Batch#17, and as of today, I will have 2 samples in my possession.

I do prefer that samples not be shipped to me while I'm on vacation, since I prefer to handle and secure the samples myself.
MY ANNUAL VACATION 2016: This is a perfect opportunity for my husband and I to go on a 2-week road trip vacation from October 7th through the 24th. Those of you who have received the kit for your MEBO TMAU test, please make sure you ship your samples to me on Monday or Tuesday, Oct 3 & 4th, so that I may receive your samples before I leave. Otherwise, please wait until I return to ship them to me on October 24 or 25th.

My younger son will be home most of the time that we'll be away, and if a package arrives, he knows to put the samples in the freezer where I normally keep them. However, he is sometimes not home, so I do prefer that samples not be shipped to me while I'm on vacation, since I prefer to handle and secure the samples myself.

Please note that I will probably not be available to answer email communications or phone calls during my vacation. I will do so when I return. Thank you for your cooperation.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


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A EURORDIS and NORD Member Organization

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