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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details :

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, September 11, 2016

Update: MEBO Metabolomic Profiling Research Study

Update on the
MEBO Metabolomic Profiling Study

On August 18, 2016, The status of the MEBO Metabolomic Profiling Research Study, NCT02683876 was changed from 'Recruiting' to 'Active, not recruiting.' This means that we are not taking any more volunteers for this study at this time. However, if you wish to be put on a wait list in case the results merit that the study continue forward, please express your interest in doing so via email at, Please do not call on the phone, as it is not always manned with a volunteer. MEBO has a wholly volunteer staff and no one has volunteered to answer the phones at this time. Your email will be answered in the order in which it was received. Thank you for your consideration to this matter.

As of today, Sept 11th, the University of Alberta lab has received 10 samples in good condition, 2 kits were returned as undeliverable to address given, and the lab is still waiting for the 15 outstanding samples. Everything is at a standstill due to the 15 outstanding samples. If you are an active participant in this study and have already received your kit, please return your samples as soon as possible because analysis of all the samples will be carried out once all have been received by the lab. The sooner you send in your samples, the faster we can move forward with the study. If you have changed your mind and do not plan to ship your sample, please let us know so that we can take this into account. Thank you.

Since this is an exploratory study, there is no guarantee that significant results will arise from it, but as MEBO has stated in the MEBO Mission, we are committed to pursue research not only into TMAU, but also to try to discover other causes of uncontrollable body and/or breath odor conditions.

MEBO Research’s Mission is to initiate formal scientific research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis conditions, including but not limited to Trimethylaminuria. In addition, studies will be initiated to analyze and categorize gut microbiota and to characterize the genes that the microbes are expressing in an effort to identify and understand microbial communities that could produce malodor symptoms, and to identify effective targeted course of treatment to control symptoms, and preferably cure the condition of our international body odor community.

I thank all the volunteer participants in this program for their contribution to this cause.


María de la Torre
Founder and Executive Director

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