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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, September 13, 2016



Batch #16 of the MEBO TMAU Test Program will be shipped to the lab on Monday, September 19, 2016. If you wish that your sample to be included in this batch, you must ship them today or tomorrow at the latest. The label included with your return UPS Pak is a 2nd Day Air service, which means that if you ship it tomorrow, it will arrive on Thursday. If you ship it on Wednesday, it will arrive on Friday. According to the plan that MEBO has with UPS, they will not deliver on Saturday. So, if you wish to ship it on Thursday or Friday for it to arrive on on Saturday, you would need to take the label I sent you to a UPS Store and pay the difference. It will be too late for your sample to be included in Batch #16 if it arrives on Monday, since delivery is usually later in the day.

At this time, there have been 32 tests sold, of which I will have received 21 or more by the end of this week. Therefore, I am obligated to ship it on dry ice on Monday using overnight shipping, as the lab requests, for the lab to receive it on Tuesday. The remaining approximately 11 samples not returned on time will then go on Batch #17 with the 9 or more samples needed to complete the batch.

The lab has 30 days to analyze the samples and return them to MEBO on a spreadsheet. I will then transpose them to individual reports and email them to their respective participants. I wish everyone who tests the best as we wait for your results.


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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A EURORDIS and NORD Member Organization


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