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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, May 4, 2017

London Meetup : 13th May 2pm

Message from Karen, MEBO Director.
contact : karen.james@meboresearch.org


LONDON MEETUP
Saturday 13th May, 2017: London Meet Up at 2pm
Al Arez Cafe (with fresh juices, Lebanese food, outdoor seating and shisha)
101 Edgware Rd, London W2 2HX

venue:
Al Arez Cafe (with fresh juices, Lebanese food, outdoor seating and shisha)
101 Edgware Rd, London W2 2HX
(Al Arez Cafe tel: 020 7262 4833 )

Alarez Restaurant - The Best Lebanese Cuisine in London.
www.alarez.co.uk. 
Nearest tube: Marble Arch, Edgware Road

We are also near Hyde Park if the weather is particularly good.

Meet up etiquette:
everybody is welcome and we are always happy to see new faces, so do't be shy
the meeting is not exclusive to tmau sufferers; it doesn't matter what the cause of your odour is, or its severity, because we all have similar experiences
everything we discuss is kept confidential
nobody is obliged to have photos taken or to swap contact details, so your privacy is completely respected (you could even use a fake name if you feel the need to!)
Hope you can make it!
Kaz

Note :
There are 2 Al Arez cafes on this street, across from each other.
Al Arez cafe and Juice bar.
Al Arez Express.
The meetup is at the 'cafe and JUICE BAR'
 

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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

Video about TMAU.

https://youtu.be/MM7GV6oLSKY

Jun 5, 2017, 1:11:00 PM
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