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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, April 23, 2019

Vote for topic 2nd Online Live Group Session Mental Health

MEBO Mental Health Director
Health psychologist, MSc.
On February 24, 2019, MEBO's Mental Health Director, Crissan Rosalia, Health Psychologist, MSc., conducted our first live Emotional Support Group Meeting, "Coping with Anxiety". There were approximately 15 English speaking participants from around the world, including the United States, Canada, Europe, Africa and the Philippines. See post, "Online Live Group Session on Anxiety Report". There was good participation from most attendees and Crissan's excellent professional advice and guidance was most helpful.

Crissan has now scheduled the second Emotional Support Group Meeting for Saturday, May 25, 2019. She explains, "This meeting is only accessible for members who have the access ID and password. Video is optional, you can stay in listen only mode if you want to, just make sure to turn off your/disable your camera before entering the meeting room."
In order to be included in the meeting, it is necessary for participants to enroll for the group support session by sending an email to The privacy of each participant is highly protected. Without identifying yourself in advance to Crissan in an email to this address, you will not be able to attend. You will not be able to join at the last minute because attention will be directed at the meeting with those already registered.

In addition, Crissan has not only invited all sufferers of malodor and/or PATM conditions to attend, but she has also asked us to vote for one of the following topics:
  • Talking about your malodor condition
  • Coping with family and friends
  • Coping with having a malodor condition at work
Please click on the icon below for full details.

I hope to see everyone there!


María de la Torre
Founder and Executive Director

A Public Charity
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