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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, September 5, 2019

Karen's MEBO Meetup : LONDON 7 Sept 11am

Karen from MEBO UK has a message :

Let's meet up before the summer ends! Everyone, as always, is very welcome.

SATURDAY 7TH SEPTEMBER 2019 from 11am onwards

AT 
ROYAL FESTIVAL HALL, SOUTH BANK LONDON
Belvedere Rd, Lambeth, London SE1 8XX

We will be at the seating area with tables in front of the foyer. The foyer and outdoor seating area are next to the fountains shown in the picture on the website:

Please call 07505 590972 if you can't find us, and be patient if you can't get through immediately.


hope you can come to meet up on Saturday at 11am at South Bank main entrance/cafe. I will only be going for 2 hours as I have to work at 2pm in a new job, but there will be many people there who will be staying until much later.


Other news ...
BO at work SURVEY ...

a_smith (author of “The Taboo of Body Odor Medical Conditions and Ecological Counternarratives.”) has set up a survey for those who have had negative experiences at work, It's posted on RareConnect
Link here

If you want to do the survey, this is the link:
https://www.surveymonkey.com/r/X6VK7KH

Best wishes,
Karen

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A EURORDIS and NORD Member Organization

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