Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Scroll down and select country
MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, September 29, 2019

MEBO and Smart Nutrition (UK)

The cheapest way to access the SHEFFIELD TMAU URINE TEST
via Smart Nutrition (Brighton UK).
Europe orders should go through ok.
MEBO gets a £5 donation.
Only 2 known 'TMAU urine test' consumer options in UK.
The other costs £399.

TMAU urine test for consumers in UK
Regular readers may know SMART NUTRITION (based in Brighton UK) has been the easiest and cheapest way to access directly the UK TMAU Urine test done by Sheffield Children's Hospital (NHS).

This service via Smart Nutrition was started around 2010, at MEBO's instigation.
MEBO knew that Biolab (London) could access NHS tests, but they required an 'approved orderer' 3rd party to actually order the test, and suggested Smart Nutrition as the 3rd party, who kindly accepted. Before MEBO asked, Biolab was not aware of TMAU.

MEBO Donation £5
Due to a misunderstanding, the donations to MEBO were not paid. But when asked about it recently (thanks to a kind forum members instigation), Smart Nutrition contacted MEBO to say it had been forgot about, and  immediately offered to rectify this with a donation of the estimated number of tests taken (about 112 est.). Thank you to Emma at Smart Nutrition for sorting it out.

Sheffield TMAU Urine test (the good and bad)
The Sheffield Test was started around 1997 by in-house biochemist Nigel Manning, using his own method. It was known worldwide as giving the most TMAU1 and TMAU2 diagnoses.
Nigel retired around 2015.
Around 2016 the machine broke and a new method was used for the new version of the test.
Since then the TMAU1s have halved and there are no TMAU2's.
The new method used is similar to that used at Denver.
Probably the majority (the 'mild's) will now be negative for TMAU, whereas in the past many would be positive.
An opinion is the test is not very fit for purpose, but it's all we have.
Political pressure on the lab, or preferably a new 'community-approved' test would seem appropriate.

'Buying the TMAU urine test'
If you want to buy the UK test, currently there are only 2 options (both ordering the Sheffield test).
1. Medichecks : £399 (no link given due to the price).
2. Smart Nutrition : £213 UK ... £233 Europe

So for now, MEBO is happy to endorse Smart Nutrition as the 'best' way to 'buy' the Sheffield TMAU urine test in the UK and Europe.
Ideally the community would have our own sourced test, which would cost maybe £100 (?), but the law, and 'finding a network' has been a barrier we have not been able to overcome.

So for now, for anyone in UK & Europe that does want to test, MEBO recommends  :

SMART NUTRITION for the Sheffield TMAU Urine Test.
£213 UK.
£223 Europe.
You are sent a kit (with hcl), and get the full report.
MEBO gets a £5 Donation

MEBO and SMART NUTRITION future :
MEBO has been talking to Emma recently, and it may be that other Biolab tests may be available (some are already on the Smart Nutrition site).
Biolab used to have a gold standard 'candida test', the ethanol blood test after a sugar load, but sadly do not do that test now.
Biolab has interesting tests but could be seen as perhaps 'indirect' tests (other than TMAU and 'leaky gut').

We will keep you updated

get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization

0 comments:

Post a Comment