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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, October 5, 2019

MALODOUR RESEARCH UK : (New Website and Campaign)


Malodour Research UK. (website)
A UK based very pro-active Patient Advocacy group.
Includes a monthly subscription fund to raise funding for research.

A community member has created a group who have created the pro-active group MALODOUR RESEARCH UK.
The main aim is to take the community to the next stage of creating positive changes for Malodour condition people.
The website was launched this week :  www.whydoismell.biz
It seems to have been created around a UK-based whatsapp group.

Although it is UK based, it will help all Malodour people worldwide, as it's main aim is research.
Other pro-active help may include :
Developing relations with politicians to create political change.
Raising Awareness.
And much more.

Monthly Subscription Fund 
It includes the option to join a £20 a month monthly subscription research fund.
webpage here )
( more about the fund )

Early days & Pioneers
Due to the taboo of malodour conditions, not much impact has been made on research or awareness since 'TMAU' was first 'documented' in 1970.
It may take a while for MALODOUR RESEARCH UK to be a known trusted brand.
Readers of the 3 main forums should be aware of some of the history of it's founding, and a trusted respected forum member makes most of the announcements in the forums now.
So of course it will take a while to get things in context, but MEBO has high hopes and welcomes this new group (from what we know).

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A EURORDIS and NORD Member Organization

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