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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Friday, April 17, 2020

NORD WEBINAR: COVID19 Critical Relief Program


NORD launches COVID-19 non-medical assistance fund

At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, NORD opened the COVID-19 Critical Relief Program on Wednesday, April 15. This program provides support to rare disease patients and families facing financial challenges in affording critical, non-medical expenses.

Through this new program, NORD will provide financial assistance to eligible patients impacted by the COVID-19 pandemic, with financial assistance for unexpected or emergency, essential expenses such as:

Unexpected utility expenses
Communication expenses (e.g. phone, cell phone, internet)
Emergency repairs to car, furnace, home or major appliances
Assistance with travel and/or lodging logistics and expenses
Rent or mortgage payment assistance
Support for adaptive learning during school closures
Those interested in the program can reach out to NORD for more information and to find out if they meet eligibility requirements at 203.242.0497 or

Webinar: Called to Action: NORD's Response to COVID-19
For more than 37 years, NORD has focused on improving the health and well-being of people impacted by rare diseases. As the world is confronted by the COVID-19 pandemic, NORD is responding to the evolving needs of the rare community. 
Please invite patients, caregivers, medical professionals and all stakeholders in your community to join NORD for a free 30-minute webinar to hear about how people with rare diseases are being affected by the pandemic and for an update on NORD initiatives and resources related to this public health crisis.

When: Tuesday,

April 21, 3:30 - 4:00pm ET

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A EURORDIS and NORD Member Organization


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