Someone has started a new TMAU AWARENESS website and social media channels.
We are all very grateful. Metabolic Malodor is such a taboo subject.
TMAYOU website
TMAYOU Twitter
Systemic Malodor Disorders Research
USA survey for anyone who wants to improve Denver TMAU test
begun : Dec22
end : no ending for now
A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).
quote from her rareconnect post
"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."
see this post for more details
https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.htmlor go through the banner
Diaspora TOTAL DONATIONS: $267.48 = £159.47 (30AUG14) 1st shipment to Kenya 3JUN14 $92.75/USD 2nd shipment to Ghana 15AUG14 $104.56/USD 3rd shipment to Kenya 19SEP14 $95.51/USD DONATIONS 2017: £5.00 (3MAR17) |
0 comments: