The MEBO Blog: Daniel's TMAU interview #10

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Denver TMAU Test Lab survey click here

click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, June 4, 2020

Daniel's TMAU interview #10

Daniel continues his TMAU interview series.

Here he is talking to Kofi.

Excellent interview. Thanks guys.

A Conversation with #10 | Kofi | TMAU/Malodour sufferer, experiences, gene sequencing & dieting

For the tenth episode of the series, I speak to Kofi, a sufferer from the UK, about his first realisation of his malodour. Kofi discusses in depth the experiences leading around this time and the tests he has taken recently and many more things! Tune in!

Like, comment, share and subscribe if you enjoy the video!

If you want to follow our TMAU instagram page:
https://www.instagram.com/tmau_wtsp/

If you want to contact me via email for an interview:
danieltmensah1@gmail.com

Subscribe to Daniel's channel : https://www.youtube.com/user/Hypestyle66/videos

A EURORDIS and NORD Member Organization

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