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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, June 8, 2020


Click on icon for full paper

[to sufferers] much of the emotions and socially hostile and isolating conditions are not new, as they currently are for the rest of the world. In fact, they've been the norm for years, and thus slowly but surely, psychological trauma sets in.
In this June article, while the world has been going through COVID19 pandemic and civil unrest and demonstrations, a need for time-out and reflection would be most helpful to those impacted around the world. It is a good time to pause and work through the strong feelings that life's reality has pummeled upon us.

In the case of sufferers of uncontrollable or difficult to control breath and body odor conditions, much of the emotions and socially hostile and isolating conditions are not new, as they currently are for the rest of the world. In fact, they've been the norm for years, and thus slowly but surely, psychological trauma sets in. Social isolation and frequent social bombardments of insults and rejection had already been a lifestyle for persons affected with this condition.  The COVID-related lockdown and feelings of threat outside our homes and shelter have served only to highlight the psychological state that has been so familiar  to so many sufferers around the world for generations!

Our MEBO Mental Health Director, Crissan, has provided us with practical tips on how to work through these feelings and the trauma it has produced.  There is a way to calm them and to allow sufferers to move forward as a physical health solution is pursued and obtained by the scientific community.

We are most grateful to Crissan for her consistent concern and tremendous support to our community through the years!


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
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