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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, June 5, 2020

Odor-Management is twofold


In most conditions, the odor management process has to be two-fold:

1.    Firstly, by stopping the introduction of odorous compounds into the body through diet.  Poorly metabolized odorous compounds at higher than normal levels will remain flowing in the bloodstream and are stored in body fat.
2.    Secondly, by assisting the body’s cleansing organs in eliminating odorous compounds.

This paper does not discuss which diet is appropriate for different causes of difficult to control body odor and/or halitosis.  The focus is on assisting and boosting the natural processes of the body’s cleansing organs.

When not addressing both aspects of odor-management, many sufferers misinterpret the results of their odor-management efforts as they attempt to self-diagnose and to explore management measures. They might have been on the perfect diet for their personal specific condition, but since the compounds are already stored in body fat and are still flowing in the bloodstream, their body and/or breath odor will continue to exist until they are cleaned out of the body. This confuses the sufferer into believing that he or she has not been able to target and manage the specific cause of odor, when in fact, only one of the two processes was actually addressed. Mistakenly, the sufferer incorrectly determines that the diet did not help, when it fact, diet alone might have addressed only one of the two required processes. 


The capillaries in the alveoli in the lungs are where the exchange of compounds take place to/from the blood and the breath. This is why the lungs act as a cleansing organ. Gasses like carbon dioxide and many odorous compounds leave the blood by passing into the lung alveoli to be released in the exhaled breath, while oxygen enters the body through inhaled breath and enters the bloodstream through the capillaries in the alveoli. During this process, odorous breath is expelled from the blood very much faster when the heart rate and respiratory rate increases with cardiovascular exercise.  One can rest assured that this gas exchange is taking place when feeling the heart beating much faster and the breathing rate increasing automatically with exercise.  Eventually, the amount of odorous compounds in the blood decrease minimizing halitosis, as long as it is not introduced back into the body with improper diet. Without cardiovascular exercise, this faster process decreases and it takes longer to control systemic body odor and/or halitosis.

This explains why stress increases the odor symptoms. When under stress, the heart rate and breath rate increases and thus more compounds from the blood come out in the breath, skin oils and perspiration. The sufferer is in greater control when increasing the heart and breath rate while exercising in a controlled environment, as opposed to waiting for a stressful social situation in which the heart and breath rate increases producing body and/or breath odor.


In addition to cardiovascular exercise, detox diets, which usually require increased hydration, help eliminate odorous chemicals from the body.  On the other hand, starvation diets may actually increase odor due to ketones.

It is also important to keep in mind that our body’s immune system fights infection through our mucous membranes and moisture on our skin, excessive cleaning of the sinuses and mouth may end up increasing halitosis symptoms by weakening our antibody filled mucous/saliva. This is why people with dry mouth syndromes, like Sjogren's Syndrome, can develop halitosis due to there not being enough natural moisture in the oral cavity resulting in increased microbial growth.


María de la Torre
Founder and Executive Director

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