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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, September 15, 2020

a bit more about FLUXOVAS tmao-reducer supp

Last week we told you about FLUXOVAS, a natural supplement intended to (presumably) block TMAO formation in the gut (hopefully a TMA-blocker too).
The patented ingredient is TAURISOLO

Taurisolo in their words (from 2019 paper)
Taurisolo® is a grape pomace polyphenolic extract microencapsulated with maltodextrins, obtained from Aglianico cultivar grape.

MEBO knows only a bit more about more it.
MEBO does not have an opinion on FLUXOVAS (as we just heard of it).

Makers : Its a food supplement and nutriceutical lab at The Uni of Naples, Italy.

Fluxovas has been on sale about a year.

Buying outside Italy
They suggested this seller might help overseas buyers to buy.
(the price looks way cheaper than the efarma price).
Currently there seems to be no known sellers outside Italy.
Farmacia Gruppio say they do ship worldwide
info@farmacievigorito.it

The Naples Uni lab are discussing TMAU etc currently.
If we hear of anything we will let you know.


Effect of Grape Pomace Polyphenols With or Without Pectin on TMAO Serum Levels Assessed by LC/MS-Based Assay: A Preliminary Clinical Study on Overweight/Obese Subjects ...

... In conclusion, we demonstrated the efficacy of a novel nutraceutical formulation in reducing TMAO serum levels in high cardiovascular risk-subjects, and proposed a useful, versatile and rapid LC/MS method for identification and quantization of TMAO, without the use of marked/isotopic internal standards. It, thus, may represent a novel and practical method with applications in clinical practice and nutraceutical research.

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A EURORDIS and NORD Member Organization

3 comments:

Anonymous said...

I have been taking this supplement since April ... I have tmau 1 and it is helpful, but it does NOT cure. For it to take effect, it must be taken for 2 months. It does not work with the rest of H2S, CYS, TMAO etc

Sep 18, 2020, 3:00:00 AM
Anonymous said...

do you need to take it lifetime or just 2 months ? does it only reduce or if you continue taking it their is a possibility that you will be cured... is it safe for a pregnant woman?

Sep 29, 2020, 9:13:00 PM
Anonymous said...

"In a previous study, we demonstrated the TMAO-reducing effect of Taurisolo® in young healthy subjects, proposing a potential mechanism of action for the effect of polyphenols in reducing TMAO levels, based on the ability of polyphenols to donate electrons to TMAO, which act as an electron acceptor, resulting in reducing TMAO to TMA"

Seems like this will do little for tmau considering tma is our problem. I ordered 3 boxes just to test it.

Oct 22, 2020, 7:23:00 AM
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