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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, September 15, 2021

Participate with experts to find solutions


https://www.imbs-alliance.org/

As MEBO has done in the past and continue to do, all sufferers from all communities, such as the MEBO community and RareConnect Trimethylaminuria community, from around the world are encouraged to become informed on who are the reputable scientists that are truly dedicated to research for body and breath odor sufferers and PATM. Frequently, they seem to be targeting similar theories in their research and other times, they seem to think outside the box and check out new theories. The researchers MEBO has worked with or have been in communications the most throughout the years and who have done PowerPoint Presentations or written handouts for our MEBO Conferences have been the following:

(scroll down on links to see all posts
and click on Older Posts to see all)
  1. Irene Gabashvili, PhD., MEBO Scientific Director and Principal Investigators of MEBO Clinical Trials,

  2. Prof Elizabeth Shephard, PhD., MEBO Consultant

  3. Nigel Manning

  4. Danny Kunz

  5. Murat Aydin, DDS, PhD.

  6. Yoshika Sekine, Univ. of Japan

  7. John Cashman, PhD., HBRI, (retired)
MEBO has enjoyed the support of many more scientists who have sponsored TMAU urine tests and clinical trials for our community as well.

Of the experts listed above, Irene Gabashvili and Danny Kunz have been the two who have consistently through the years asked all sufferers to assist them in their studies by donating personal test results to them and to answer a few questions regarding medical conditions with the data. They each have been acummulating a large database of test results, which they reference in their analysis of their research. If you wish to contact these 2 scientists, Irene Gabashvili and Danny Kunz, in order to offer them your test results and to discuss these results further, you can read about their work and get their contact information from their respective websites:

Irene Gabashvili:
irene.gabashvili@meboresearch.org
irene@aurametrix.com Website and blog: Aurametrix Blog

Danny Kunz:
support@imbs-alliance.org (Patient support)
danny.kunz@gmx.de
contact@imbs-alliance.org (Legal concerns around the domain and content)
Websites: https://www.imbs-alliance.org/
http://bodyodorresearch.blogspot.com/2017/04/the-body-odor-smell-type.html

We are most greatful to all our scientists for looking in our direction.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.meboresearch.co.uk
MEBO's Blog (English)
El Blog de MEBO (español)


A EURORDIS and NORD Member Organization

3 comments:

Anonymous said...

One more comment on archaeabacteria and Harvard: My Congressman, Dr. Raul Ruiz, is young and graduated from Harvard medical school fairly recently. He has been very active in health issues, and has acquired a lot of influence in that area. You can see his list of accomplishments on his website: Dr. Raul Ruiz, D-CA, Riverside County, Congressional Representative.

Anyway, I know he would listen to whatever the MEBO Community had to say and do his best to help.

Who knows, he might even have worked with archaeabacteria himself in medical school!

Sep 19, 2021, 3:21:00 AM
Anonymous said...

Another idea: Trace Minerals Research in Ogden, Utah will manufacture products for a private label with a

minimum of 2,500 orders. Possibly a TMAU cure would be eligible for this program. If we could settle

on one, focus and make it come to pass, there could be a cure on the market soon.

Perhaps Dr. Hazen would allow us to use DMB in the product, with royalties of course.

This is not such a wacky idea, the more you look into it. The link is: Trace Minerals Research, then click

on Private Label at the top far right of the page.

Oct 6, 2021, 11:32:00 PM
Anonymous said...

Also on this same topic: the book, "The Alladin Factor" by Jack Canfield and Mark Victor Hansen. Most of us are reluctant to ask for what we need or want. This book takes a different approach and looks at asking
from new angles. Rather inspiring!

Oct 8, 2021, 4:05:00 AM
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