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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, September 15, 2021

Participate with experts to find solutions

As MEBO has done in the past and continue to do, all sufferers from all communities, such as the MEBO community and RareConnect Trimethylaminuria community, from around the world are encouraged to become informed on who are the reputable scientists that are truly dedicated to research for body and breath odor sufferers and PATM. Frequently, they seem to be targeting similar theories in their research and other times, they seem to think outside the box and check out new theories. The researchers MEBO has worked with or have been in communications the most throughout the years and who have done PowerPoint Presentations or written handouts for our MEBO Conferences have been the following:

(scroll down on links to see all posts
and click on Older Posts to see all)
  1. Irene Gabashvili, PhD., MEBO Scientific Director and Principal Investigators of MEBO Clinical Trials,

  2. Prof Elizabeth Shephard, PhD., MEBO Consultant

  3. Nigel Manning

  4. Danny Kunz

  5. Murat Aydin, DDS, PhD.

  6. Yoshika Sekine, Univ. of Japan

  7. John Cashman, PhD., HBRI, (retired)
MEBO has enjoyed the support of many more scientists who have sponsored TMAU urine tests and clinical trials for our community as well.

Of the experts listed above, Irene Gabashvili and Danny Kunz have been the two who have consistently through the years asked all sufferers to assist them in their studies by donating personal test results to them and to answer a few questions regarding medical conditions with the data. They each have been acummulating a large database of test results, which they reference in their analysis of their research. If you wish to contact these 2 scientists, Irene Gabashvili and Danny Kunz, in order to offer them your test results and to discuss these results further, you can read about their work and get their contact information from their respective websites:

Irene Gabashvili: Website and blog: Aurametrix Blog

Danny Kunz: (Patient support) (Legal concerns around the domain and content)

We are most greatful to all our scientists for looking in our direction.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization


Anonymous said...

One more comment on archaeabacteria and Harvard: My Congressman, Dr. Raul Ruiz, is young and graduated from Harvard medical school fairly recently. He has been very active in health issues, and has acquired a lot of influence in that area. You can see his list of accomplishments on his website: Dr. Raul Ruiz, D-CA, Riverside County, Congressional Representative.

Anyway, I know he would listen to whatever the MEBO Community had to say and do his best to help.

Who knows, he might even have worked with archaeabacteria himself in medical school!

Sep 19, 2021, 3:21:00 AM
Anonymous said...

Another idea: Trace Minerals Research in Ogden, Utah will manufacture products for a private label with a

minimum of 2,500 orders. Possibly a TMAU cure would be eligible for this program. If we could settle

on one, focus and make it come to pass, there could be a cure on the market soon.

Perhaps Dr. Hazen would allow us to use DMB in the product, with royalties of course.

This is not such a wacky idea, the more you look into it. The link is: Trace Minerals Research, then click

on Private Label at the top far right of the page.

Oct 6, 2021, 11:32:00 PM
Anonymous said...

Also on this same topic: the book, "The Alladin Factor" by Jack Canfield and Mark Victor Hansen. Most of us are reluctant to ask for what we need or want. This book takes a different approach and looks at asking
from new angles. Rather inspiring!

Oct 8, 2021, 4:05:00 AM
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