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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, August 20, 2023

Cracking the Code of PATM

People Allergic to Me (PATM) condition has long baffled sufferers and medical experts, leaving many without a diagnosis and grappling with mental health challenges. Even though there are some shared microbes in the microbiome, only small subset of PATM sufferers have received a TMAU diagnosis. 

A study conducted by Professor Sekine and published in Nature Scientific Reports has uncovered new insights into this condition. Sekine's research team comprehensively analyzed the skin gas profiles of 44 study participants, 20 of whom suffered from PATM while 24 were in a control group. Using gas chromatography mass spectrometry, they identified major differences in the production of volatile organic compounds between the two groups.

Among the 75 measured skin gases, the PATM group exhibited significantly greater emission fluxes for some chemicals with offensive odors. The emissions of several petrochemicals were also notably higher in the PATM group aligning with our yet to be published results from MEBO-Menssana Alveolar Breath Test Study (registered as NCT03451994). Results of our Microbiome study (registered as NCT03582826) may explain possible microbial sources of compounds that differentiate PATM from non-PATM populations. More on Professor Sekine's findings is available in Aurametrix blog and the original paper

We will be publishing our complementary results soon, further contributing to the scientific community's knowledge of PATM, TMAU and MEBO.


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