In a new blog post, we explore the evolving landscape of research and community engagement surrounding poorly understood medical conditions MEBO and PATM. The timeline spans from the late 1990s to 2023, capturing key milestones:
Late 1990s - early 2000s: The Dawn of Online Support Forums
2006-2007: Birth of MEBO and PATM Communities
2008: Broadening the Dialogue
2009: Formalizing Research Efforts
2010: Unveiling the Microbiome and Genetic Factors
2011: The Advent of Genomic Data Sharing
2012: Empowering Patients Through Technology
2013: Deepening Theoretical Insights
2014: Therapeutic Innovations
2015: Expanding Testing and New Molecular Targets
2016: Streamlining Diagnostic Approaches
2017: Diagnostic Breakthroughs and the Social Media Shift
2018-2020: Advancing Research and Understanding
2021-2023: Ongoing Challenges and Future Directions
Despite significant advancements,
the post underscores the challenges faced by these communities, including the lack of interest from mainstream science and the absence of definitive cures. It serves as both a historical account and a call to action for increased scientific inquiry into these conditions.
1 comments:
This is so impressive. Surely such amazing work will bring about some definitive results in the near future.