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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, September 28, 2008

video: foot odor case caused by corynebacteria

Possibly many cases of bad foot odor are regarded by sufferers as 'incurable', whereas in reality it may be a case of having a local undidagnosed foot infection. Most are aware of 'athletes foot', which is a fungal problem, but perhaps bacteria infections are overlooked.

This is a video of a case of foot odor caused by corynebacteria. The Dr describes his condition as 'pitted keratolysis'. It is from a TV programme about body/foot odors aired on TV in the UK in the early-mid 90s.

Apparently in 2006, a paper was published that claimed that the main source of foot odor in cases that didn't have pitted keratylosis was caused by Staphylococcus epidermidis. The smell in this case is said to be caused by isovaleric acid.

points of discussion:

The Dr presribes an antibiotic cream. Perhaps there are other topical ways to kill the bacteria off. Or even oral-natural-antibiotic type answers (such as herbs).

Anyone with 'incurable' foot odor should probably ask their health system to check your feet out for local infections.

Perhaps today the likes of antibacterial socks make the problem more easily treatable.

Perhaps it indicates a gut flora issue, but this would be very speculative to assume.

reference links:
Emed article on pitted keratolysis
VisualDXhealth photos and article on pitted keratolysis
Pubmed 2006 paper on foot odor: Isovaleric acid produced by Staphylococcus epidermidis was regarded as most to blame
Wikipedia entry: foot odor


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