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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, March 19, 2010

Informal webinar tomorrow. Watch or join

body odor nashville meetupTomorrow we will host an online webinar live from the body odor & halitosis meetup in Nashville at 11am Central Time. It is scheduled to last an hour. Come and join in with your webcam, or just to watch. You can watch it here if you want or join the event.

Thanks to everyone who attended. There was around 13 viewers at anytime. For your information about privacy in Vokle, no-one outside the room can see the chatroom. They seem to be enjoying themselves in Nashville, with about 17 present in the room, and are now going to dine out at Ellendales.

Hopefully webinars will become a part of our community communcication processes.

tmau service dogWe are still investigating if we could possibly have webinars with FMO3/TMAU and body odor experts over April/May, although we are having difficulty finding a suitable webinar program, due to suitability and/or price. Some experts have kindly offered to give us pre-recorded video presentations on their work, and a powerpoint slideshow. Ideally we would also like to have webinars, but will need to find a way to overcome the obstacle of finding the right program at a reasonable price. Our initial feedback from the experts was extremely positive, but unfortunately we have stumbled on the webinar program technically.


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