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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, March 21, 2010

Final day in Nashville

Howdy ya' all,

Those of us who didn't have to return home today met again in the Governor's Suite and discussed Nigel Manning's paper that he wrote specifically for our meetup. We waited to no avail for the rain to ease up to go out to see the town. So we took off in two cars to the Pathenon anyways and took some pictures of this very beautiful place. Please excuse the 'wet chicken look'. We had a nice lunch/dinner at Chili's and took one of us to the airport.

Vallie was such a good puppy! She always goes under the table and sleeps while we eat. She's so good, the waitress didn't even realize we had a dog with us! What a good girl! She's so loving and nurturing. And she's such a fun-loving pup!

We're back in the hotel now. Vallie was initially very much afraid of the glass elevators that just seemed to be going upwards! She would ' hit on the breaks' with her front pause when we tried getting her into the elevator, but now she's gotten more used to it. She doesn't like the loud birds in the cage at the lobby - they're too loud. She couldn't understand why she couldn't drink from the lobby fountain, after all, she was thirsty. I must have seemed like a terrible person to her, and she silently cried...

Well, Vallie is going to start her first TMA scent odor lesson. Those of us remaining are going to do saliva swabs with a cotton swab and put each in a container and freeze it. Tomorrow they will be taken to Franfort, Kentucky, and the one of the person diagnosed with TMAU will be used to teach Vallie to identify the scent. Then the other opened containers of the saliva swabs will be lined up about 10 feet away, and Vallie will be asked to find the ones with the same scent. She will be performing her first TMA search and find job! She's done it with other scents already. Then we'll see if she detects it in our other samples, and the sufferer will be advised. Afterwards, the sky is the limit!!!

Hope you enjoy our pictures and upcoming videos in the weeks to come.



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