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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, March 21, 2010

Final day in Nashville

Howdy ya' all,

Those of us who didn't have to return home today met again in the Governor's Suite and discussed Nigel Manning's paper that he wrote specifically for our meetup. We waited to no avail for the rain to ease up to go out to see the town. So we took off in two cars to the Pathenon anyways and took some pictures of this very beautiful place. Please excuse the 'wet chicken look'. We had a nice lunch/dinner at Chili's and took one of us to the airport.

Vallie was such a good puppy! She always goes under the table and sleeps while we eat. She's so good, the waitress didn't even realize we had a dog with us! What a good girl! She's so loving and nurturing. And she's such a fun-loving pup!

We're back in the hotel now. Vallie was initially very much afraid of the glass elevators that just seemed to be going upwards! She would ' hit on the breaks' with her front pause when we tried getting her into the elevator, but now she's gotten more used to it. She doesn't like the loud birds in the cage at the lobby - they're too loud. She couldn't understand why she couldn't drink from the lobby fountain, after all, she was thirsty. I must have seemed like a terrible person to her, and she silently cried...

Well, Vallie is going to start her first TMA scent odor lesson. Those of us remaining are going to do saliva swabs with a cotton swab and put each in a container and freeze it. Tomorrow they will be taken to Franfort, Kentucky, and the one of the person diagnosed with TMAU will be used to teach Vallie to identify the scent. Then the other opened containers of the saliva swabs will be lined up about 10 feet away, and Vallie will be asked to find the ones with the same scent. She will be performing her first TMA search and find job! She's done it with other scents already. Then we'll see if she detects it in our other samples, and the sufferer will be advised. Afterwards, the sky is the limit!!!

Hope you enjoy our pictures and upcoming videos in the weeks to come.



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