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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, March 24, 2010

Teaching your dog to detect a scent


The cruel irony of having body odor and/or halitosis is that normally the person cannot smell themselves, making it impossible to monitor their problem. This is why we are looking at ways of detecting human scents, such as using a scent dog, or investigating other ways such as TMA urinalysis paper (currently it is unlikely we could convince a manufacturer to produce this, due to them thinking TMAU is rare). Although it is probably best to get an expert to help train a dog to detect a scent (such as trimethylamine), in theory it should be possible to train most dogs, no matter the age (according to one drug-detection dog trainer on youtube). Apparently as long as the dog has the drive, it should be possible. Another obstacle may be in getting trimethylamine. Perhaps urine of a high TMA level could be tried. Or perhaps even rotting fish (?). This post is focussing on trimethylamine. We are not quite sure how we could get a dog to discriminate the myriad of bowel smells most people seem to complain of.

In this video, the dog trainer is training the dog to first associate the paw behavior with a treat, and then pawing the scents for treats. Obviously it should be easy to train a dog to detect trimethylamine, but it may be more difficult to detect it at various levels of intensity. Perhaps to a dog, all humans have a trimethylamine odor. Anyhow, this is posted in case any dog-owners wish to learn more about training a dog how to detect a scent. There are many more videos on youtube. If you get anywhere, please let us know.

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