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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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Full details : https://goo.gl/TMw8xu
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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, August 17, 2010

TMAU testing through Nigel for persons outside the UK





Nigel Manning
Principal Clinical Scientist
Dept. Clinical Chemistry
Sheffield Children's Hospital
Sheffield


email : Nigel.Manning@sch.nhs.uk


Nigel Manning, Principal Clinical Scientist, who performs the TMAU tests in the UK through NHS and most private companies, has informed us that anyone in the world can test for TMAU through him as long as “the samples are sent by express courier to arrive within 2 days or as soon as possible.” You would need to contact him to determine if more than 2 days are acceptable in your specific case. He gives us an Instruction Packet for the patient to give their doctor that includes an explanation of TMAU and the testing process, as well as the step-by-step instruction of how to prepare and ship the specimen.

His fee is £134 + tax or approximately 160 Euros, subject to £/Euro or £/other applicable currency exchange rate (the patient is responsible for shipping charges to get the specimen to the lab in a timely manner). This includes additional testing for dimethylglycine if the TMA test result is normal.

Do keep in mind that if your ration (TMA/TMA-oxide) is borderline and requires clarifying, Nigel might request a further sample to confirm the first sample and exclude the possibility that bacteria in the sample itself caused some generation of TMA. This would be considered a standard follow-up involving checking a repeat culture before TMA analysis. Nigel tells us that,
The second sample should be collected during a period of odour - if necessary it would be best to have a meal high in choline 3 hours before the second sample (eg 2 eggs and baked beans on toast).

If you have been tested already outside the UK and received a negative TMAU result, and/or you wish to see if you would be diagnosed with Secondary TMAU in the UK, you might want to consider testing through Nigel. In this case, it would be best to email him a copy of your current results to consult with him beforehand for him to determine if he would test you again. If the Secondary TMAU test comes back negative, Nigel will then test for dimethyglycine without additional charge. Keep in mind that you would still need your doctor’s order for the test and you can give your doctor Nigel’s 2-page packet.

We extend our gratitude to Nigel for being so very supportive of our international community’s needs.

María de la Torre
President and Executive Director
MEBO Research
maria.delatorre@meboresearch.org
www.meboresearch.org

Related Posts:
New Trimethylaminuria document from Nigel Manning
Part 2 of interview with Nigel Manning
Interview with Dr. Robin Lachmann, PhD, MRCP, Consultant in Metabolic Medicine
UK Trimethylaminuria testers can contact Nigel Manning to ask questions about their results

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