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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, August 19, 2013

Reaching our first fundraising goal!

BannerFans.com

See Orphanet link to research project

Karen 
On August 5th, Karen sent us a message in a post explaining the need to fundraise to supplement the UK's Medical Research Council (MRC) grant for TMAU therapeutic research through Trinzyme. At the time, we had raised £250, and set our goal to raising at least £1,000 before Christmas 2013 to show MRC that we are a united, proactive international community committed to finding a cure.

I am happy to say that as of this morning, August 19th, we have raised,

£694.65GBP = $1,086.92/USD
(at today's rate of exchange)!

At this rate, we will reach our goal for December ahead of time. I am proud of our community for coming forward with enthusiasm to pursue this research, so that sufferers will have a treatment that will effectively control odor symptoms for sufferers. Please keep your donations coming. The more we are able to raise, the less funding we will need from investors who will then be looking to make a profit off our community. Let's keep the cost of this therapeutic down, so that all sufferers around the world and all future generations can have access to it.

THANK YOU FOR YOUR GENEROSITY!
Maria


Best Wishes, Maria and Karen




MEBO UK PAYPAL FOR TRINZYME
********
MEBO US PAYPAL FOR TRINZYME
Your currency will be automatically converted to USD or GBP by PayPal.
Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.



María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)




A EURORDIS and NORD Member Organization 

2 comments:

Anonymous said...

can we get mebo for trinzyme project UK TMAU Therapeutic Research full address and postal code or bank account number to send some money Thanks><

Aug 20, 2013, 2:14:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Anonymous,

I need to call HSBC, the bank in the UK where MEBO has its business accounts, to find out which would be the best way to collect donations and grants that would be deposited directly to an account specifically established for the MRC grant funded Trinzyme TMAU Therapeutic Research Project.

MEBO has three deposit bank accounts with HSBC, one for British Pound Sterling (GBP), another for Euros (EUR), and another for U.S. Dollars (USD) currencies. Since donations will be made from different countries in the world, I would like to discuss with the bank to see if there is a way it can be directly deposited into these accounts, while at the same time, protecting MEBO from scammers who may end up doing unauthorized business under MEBO’s identity.

I believe that banks have programs for this, but I also suspect that they are costly. I really wouldn’t want the funds donated to go towards costly administrative expenses as these if at all possible. There probably will be a cost, but I want to try to find the lowest cost and most effective method. I hesitate to jump into any program for this without guidance from professionals that are experts in the British banking and legal system.

Another idea is to establish a Trust specifically for Trinzyme taking advantage of these multicurrency MEBO Business Bank accounts to minimize currency exchange fees wherever possible.

I believe that we desperately need PRO-BONO legal services to assist us in this endeavor. Would anyone know of a solicitor in England who would like to assist us with this? It would be greatly appreciated.

Meanwhile, I will contact HSBC to discuss this further with them.

Aug 20, 2013, 5:58:00 PM
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