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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, July 30, 2014

How to use this blog "for beginners" Part 3

Back in April 19, 2011, when the blog only had 864 posts, I published a post in this blog entitled, "How to use this blog : for beginners" Part 2.” Now the blog has 1,356 posts, and we have grown so much as an international community. We have sought for and acquired so much more information, and thanks to the support and guidance of so many experts, new funded research projects have been launched, including the UK Medical Research Council(MRC) funded research "Therapy for the body and Breath malodour disorder Trimethylaminuria (TMAU)". are underway and the first ever TMAU testing in Latin America was launched in Brazil. Now, we have so much more new information to offer, that I struggle to find a way to introduce all this information to a newcomer. Where do we begin?

Please refer to MEBO website in which discussion on the different types of systemic and metabolic body odor and halitosis conditions. The Trimethylaminuria section featurse a PowerPoint presentation given to MEBO Research by the renown Dr. Elizabeth Shephard on FMO3 enzyme and TMAU for viewing in the conference part of our Washington DC Meetup 2011. For the MEBO Annual Meetup and Conference held in Miami Beach in 2012, Dr. Shephard also prepared a PowerPoint Presentation, "Pharmacogenetics & Personalized Medicine". This presentation discusses how chemicals affect different people differently, and sufferers are more sensitive to them than non-sufferers. Professor Elizabeth Shephard is one of MEBO's Scientific Advisers, a Member of the MEBO Institutional Ethics Review Board (IRB), and heads the above-mentioned MRC funded research in the UK.

Many of MEBO members and directors have participated in various projects in the MEBO Raising Awareness Campaign. All members, new and old, are encouraged to take the initiative and become proactive in this campaign.

One can browse through the Interviews with Experts section (scroll down to see all posts), in which experts have kindly given us answers to many of our questions. Some interviews are easier to understand than others, but it time, things will begin to make more sense, and you will begin to understand your odor condition better. It is in understanding our respective body odor condition that leads us to determining what odor-management protocol to follow to reduce our body odor.

Equally as important to determining the degree of odor, we also do need to become informed on the sensitivity, or lack of sensitivity of the human olfactory system. The post, “Do they smell me or not?” attempts to address this question.

This leads us to some suggestions on some blog posts on TMAU odor-management protocols recommended by the US National Institutes of Health (NIH), and its variations adapted by different cultures. The value of probiotics and prebiotics is also stressed to help with gut flora imbalances (gut dysbiosis), which may have odor-producing microorganisms overpopulating in our gut, irritating the semipermeable wall, thus allowing larger molecules to filter through to the bloodstream, that perhaps should not do so under normal condition. Also, there are TMA and hydrogen sulfide odor-producing bacteria in the gut, vagina, and dorsal tongue that have been treated with probiotics (in some cases successfully).

You will find that there are many posts written on bromhidrosis, hyperhidrosis, halitosis, and foot odor.

A whole page is dedicated to the International TMAU Testing Labs from around the globe. The lab, DLE- Medicina Laboratorial in Brazil to launch the first TMAU Urine Test in Latin America with MEBO Research on January 6, 2014, and already approximately 10 sufferers in Brazil have been able to do their urine test. The program is being further developed to be able to provide services to the rest of Latin America.

The MEBO Blog also has a page highlighting the various groups that comprise our International Community Involvement. As an organized international community, we have written an Anthology of testimonials expressed in poetry, essays and short stories. We also carry out our Raising Awareness Campaign in the medical and mental health community, as well as in society at large in multiple countries.

You might also enjoy watching the videos we have in various posts throughout this blog.

This is only scratching the surface of a well-rounded coverage of body odor conditions, our international community of volunteers' proactive involvement, and testing sites, and I hope you find this information interesting and useful in learning management techniques regarding your own condition.


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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