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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, July 22, 2014



There are a few members of the MEBO international community that live in various countries in Africa who have diligently attempted, without success, to purchase the recommended supplements and skin cleansers recommended in the Trimethylaminuria Odor-Management Protocol. Athough some African countries do have access to these supplements and cleansers, many do not.

MEBO would like to provide support (at a minimal cost) to sufferers in countries who do not have online or physical access to supplements and skin cleansers. This project depends on small donations from many sufferers around the world.

With support from our MEBO international community, MEBO set up a trial-run shipment of supplements and skin cleansers with to Nairobi, Kenya on June 3, 2014, so that based on the outcome of this shipment, we could determine whether MEBO could begin a Supplements for Africa Drive. This shipment took 49 days to arrive to its final destination on July 22nd, and it was intact and in good condition. The benefits of setting up this program with is that they would be the ones dealing with the various countries' Customs Agencies, and their shipping cost is the lowest available.

The following are the products shipped to Nairobi:
  • (2) Charcoal 260 mg by Source Naturals - 200 Capsules each bottle
  • (1) Chlorofresh Mint by Nature's Way - 16 fl oz
  • (1) B-2 250 mg by Nature's Life - 100 Tabs
  • (1) Salicylic Acid Scalp Shampoo by Collective Wellbeing - 11.5 fl oz
  • (1) Psoriasis Medicated Body Wash by Home Health Products - 8 oz (even though TMAU is not related to psoriasis, this was the only scalp and body wash that has the active ingredient of Salicylic Acid, and natural ingredients, allantoin, Aloe Verga Gel, Carrot Oil, Echinacea Extract, and Jojoba Oil.)
The total cost for all these items was $55.25 and the shipping cost to Kenya is only $37.50 through (total $92.75 USD), and the recipient paid 518 Kenya Shillings (Ksh.), which is approximately $5.89 USD when claiming the shipment.

Since many sufferers in the US and the UK have expressed interest in donating to this program, MEBO has created a PayPal Donate Button that goes directly to the MEBO US PayPal Account or the MEBO UK PayPal Account, according to the donor's preference. When you begin the donation process, it will be clearly indicated that your donation is going to go to the SUPPLEMENT FOR AFRICA DRIVE.

With a small donation from each of us, our fellow-sufferers can share in the same opportunities as other sufferers around the world to try to manage their symptoms.

NOTE: It is very important to point out that these supplements and skin cleansers alone will not control TMAU odor symptoms. It is extremely important to follow the protocol exactly as prescribed in order to decrease the production of TMA in the gut and to cleanse TMA from the body.





Thanking everyone in advance for your donations.


María de la Torre
Founder and Executive Director

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