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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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Full details : https://goo.gl/TMw8xu
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Videos : TMAU stories

Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Saturday, April 14, 2018

Raising Awareness about PATM

It is MEBO’s aim to allow its members from around the world to have a voice and the opportunity to tell their story to the world. For this reason, the MEBO Raising Awareness Campaign was created. This video is made by a young university student in the Middle East, who wants the opportunity to comment on the study carried out by Professor Yoshika Sekine and his team of researchers (2018). The graphs shown in this video taken from Professor Sekine’s Slideshow presentation for the MEBO Conference clearly show the presence of chemicals and microbes found on PATM subjects.

In this video, Muhammad also addresses Olfactory Reference Syndrome (ORS), which many in the medical community resort to, for lack of research to form a more targeted diagnosis. It is for this very reason that the American Psychiatric Association (APA) listed ORS in the Appendix for Further Research classification. It is now classified as “an Obsessive Compulsive Spectrum Disorder with a strong anxiety component. As such, it belongs in the new Anxiety and Obsessive-Compulsive Spectrum Disorders category,” says Dr. Jennifer L. Greenberg, Psy.D., with the Massachusetts General Hospital and Harvard Medical School., who studied our MEBO community in 2010. This classification now calls for mental health therapy for body odor and PATM sufferers to be focused on treating the anxiety and obsessive-compulsive disorder that comes with having these conditions, as opposed to being administered medication for delusional symptoms, in order to help sufferers become functional members of society.


While many delusional patients are treated with antipsychotics, Greenberg said, "What we are starting to think more about is that the disorder presents like disorders that are closer to obsessive compulsive disorder.

This MEBO member who suffers from PATM Syndrome, represents a large sector of the MEBO population who have observed how those around them, and in some cases their own children, experience allergic reactions when they are near the PATM sufferer. “It’s like ‘the cat’ entered the room, and my kids start to sneeze, get teary eyed, when they get near me, and then their symptoms stop when I leave! I am their father, and I want to be able to be with them without inflicting these symptoms on my own kids!” says a PATM sufferer.

Thank you Muhammad for telling your story and representing the whole PATM community around the world.


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
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A EURORDIS and NORD Member Organization

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