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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, April 14, 2018

Raising Awareness about PATM

It is MEBO’s aim to allow its members from around the world to have a voice and the opportunity to tell their story to the world. For this reason, the MEBO Raising Awareness Campaign was created. This video is made by a young university student in the Middle East, who wants the opportunity to comment on the study carried out by Professor Yoshika Sekine and his team of researchers (2018). The graphs shown in this video taken from Professor Sekine’s Slideshow presentation for the MEBO Conference clearly show the presence of chemicals and microbes found on PATM subjects.

In this video, Muhammad also addresses Olfactory Reference Syndrome (ORS), which many in the medical community resort to, for lack of research to form a more targeted diagnosis. It is for this very reason that the American Psychiatric Association (APA) listed ORS in the Appendix for Further Research classification. It is now classified as “an Obsessive Compulsive Spectrum Disorder with a strong anxiety component. As such, it belongs in the new Anxiety and Obsessive-Compulsive Spectrum Disorders category,” says Dr. Jennifer L. Greenberg, Psy.D., with the Massachusetts General Hospital and Harvard Medical School., who studied our MEBO community in 2010. This classification now calls for mental health therapy for body odor and PATM sufferers to be focused on treating the anxiety and obsessive-compulsive disorder that comes with having these conditions, as opposed to being administered medication for delusional symptoms, in order to help sufferers become functional members of society.

While many delusional patients are treated with antipsychotics, Greenberg said, "What we are starting to think more about is that the disorder presents like disorders that are closer to obsessive compulsive disorder.

This MEBO member who suffers from PATM Syndrome, represents a large sector of the MEBO population who have observed how those around them, and in some cases their own children, experience allergic reactions when they are near the PATM sufferer. “It’s like ‘the cat’ entered the room, and my kids start to sneeze, get teary eyed, when they get near me, and then their symptoms stop when I leave! I am their father, and I want to be able to be with them without inflicting these symptoms on my own kids!” says a PATM sufferer.

Thank you Muhammad for telling your story and representing the whole PATM community around the world.


María de la Torre
Founder and Executive Director

A Public Charity
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