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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, August 10, 2019

UK Members' TMAU Meeting St Mary's Hospital

Message from Karen James,
MEBO Public Relations Director

Moderator RareConnect Trimethylaminuria Community


Karen on UK TV 2011
SATURDAY 19TH OCTOBER
from 11am until 1pm.

Meeting with Dr. Elizabeth Shephard, PhD.
and other TMAU specialists

Please keep this date free if you can be in London because some specialists, including Dr Elizabeth Shephard, have agreed to give up their Saturday morning to have a meeting with us at:

St Mary's Hospital
Praed St, Paddington
London W2 1NY

One focus of the meeting may be discussing the need for a more comprehensive, useful TMAU test. I hope that many odour sufferers will be able to attend this meeting as large numbers of us would demonstrate our commitment to moving things forward.

Karen

Professor Elizabeth Shephard, PhD., was awarded a £358,000 GBP Research Grant by the UK Medical Research Council (MRC) for the research of a "Therapy for the body and breath malodour disorder Trimethylaminuria (TMAU). See the UK Research Councils Gateway To Research site for more information on this grant.

As a MEBO Scientific Advisor, Prof Shephard has made numerous PowerPoint presentations for the MEBO Annual Conferences, done webinars and interviews and written articles in professional journals on TMAU. She has also spearheaded initiatives nominating TMAU as a disability in the U.S. Social Security Administration in support of our community, and done numerous interviews with the press on our behalf. Below are only a few of the PowerPoint presentation Prof Shephard has done for our community through the years:


Dr. Shephard's PowerPoint Presentation for MEBO Conference 20112:
Pharmacogenetics & Personalized Medicine

FMO3/TMAU Webinar 2011:
Bugs, genes and Drugs
, An analysis on drug metabolism involving FMO3,CYPS (P450s) and possibly other metabolic enzymes.

PowerPoint Presentation on Gut microbiome and diet, by Professor Elizabeth Shephard for the MEBO Annual Meetup and Conference 2017

We are most appreciative for this meeting being offered to TMAU sufferers and for the experts who are organizing it. It is important to show support to our experts when they take the time to help our community.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
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