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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, August 10, 2019

UK Members' TMAU Meeting St Mary's Hospital

Message from Karen James,
MEBO Public Relations Director

Moderator RareConnect Trimethylaminuria Community

Karen on UK TV 2011
from 11am until 1pm.

Meeting with Dr. Elizabeth Shephard, PhD.
and other TMAU specialists

Please keep this date free if you can be in London because some specialists, including Dr Elizabeth Shephard, have agreed to give up their Saturday morning to have a meeting with us at:

St Mary's Hospital
Praed St, Paddington
London W2 1NY

One focus of the meeting may be discussing the need for a more comprehensive, useful TMAU test. I hope that many odour sufferers will be able to attend this meeting as large numbers of us would demonstrate our commitment to moving things forward.


Professor Elizabeth Shephard, PhD., was awarded a £358,000 GBP Research Grant by the UK Medical Research Council (MRC) for the research of a "Therapy for the body and breath malodour disorder Trimethylaminuria (TMAU). See the UK Research Councils Gateway To Research site for more information on this grant.

As a MEBO Scientific Advisor, Prof Shephard has made numerous PowerPoint presentations for the MEBO Annual Conferences, done webinars and interviews and written articles in professional journals on TMAU. She has also spearheaded initiatives nominating TMAU as a disability in the U.S. Social Security Administration in support of our community, and done numerous interviews with the press on our behalf. Below are only a few of the PowerPoint presentation Prof Shephard has done for our community through the years:

Dr. Shephard's PowerPoint Presentation for MEBO Conference 20112:
Pharmacogenetics & Personalized Medicine

FMO3/TMAU Webinar 2011:
Bugs, genes and Drugs
, An analysis on drug metabolism involving FMO3,CYPS (P450s) and possibly other metabolic enzymes.

PowerPoint Presentation on Gut microbiome and diet, by Professor Elizabeth Shephard for the MEBO Annual Meetup and Conference 2017

We are most appreciative for this meeting being offered to TMAU sufferers and for the experts who are organizing it. It is important to show support to our experts when they take the time to help our community.


María de la Torre
Founder and Executive Director

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